Something about the President of TPH…….

October 4th, 2007

 

Hi All,

I haven’t been to The Pilot House yet, but would just like to say a little something about Doreen Caruso, its President.  She did a remarkable job as SEPTA President and created an amazing opportunity in the SEPTA summer camp here in Fairfield.  She is a wealth of information for parents of children with disabilities, and truly advocates for them. There is no doubt that the SEPTA camp was staffed with people of quality and dedication.  I can only assume The Pilot House will be an extension and provide even more inclusive opportunities.  (Don’t mind my rant, Doreen really just deserves a little lauding.)

Annmarie

__._,_.___

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The Puzzle of Hidden Ability….

September 12th, 2007

PLease check out this link regarding IQ testing for children on the spectrum.

http://www.msnbc.msn.com/id/20226463/site/newsweek/page/0/

Write your Senators now…… We need to stick together

September 12th, 2007

Dear Friend,

As you may be aware, the United States Supreme Court has issued two horrible decisions over the last two years from the point of view of parents trying to assert their right to a free and appropriate public education for their disable child.  It is time for Congress to step in and wipe out these decisions.  To that end, I wrote the letter below to Senators and Representatives from Connecticut.  If you are interested, I think you should do the same.  If you have any questions or want to discuss this, let me know.

Andy Feinstein

The Honorable

Joseph Lieberman

United States Senate

Washington, D.C.

20510

 

Dear Senator:

 

            Twice in the last two years, the United States Supreme Court has rendered decisions substantially abrogating the right of parents of children with disabilities to secure a free appropriate public education for their children.  I ask that you take a leading role in legislatively reversing these decisions and restoring the balance created by the Individuals with Disabilities Education Act (IDEA).

 

            As you know, the federal Congress, in 1974, followed

Connecticut in establishing a guarantee to education for children with disabilities.  The IDEA places an array of requirements on states that accept federal elementary and secondary education funds.  To ensure that individual students are provided with appropriate educations, the IDEA establishes an administrative hearing process under which parents or guardians can compel school districts to meet the requirements of the IDEA.  If the parent is successful, the school district is obligated to pay the parents’ legal fees.  Decisions of the administrative hearing officer are subject to court review.

 

            In Schaffer v. Weast, the Court held that, where parents bring a due process action challenging the educational program offered by the district, the parents bear the burden of proof.  While this decision did not overturn Connecticut’s regulation assigning the burden of proof to the school district, it did have a severe effect throughout the country and has signaled to the federal courts a level of deference to school district decision making which is not merited, even in Connecticut.  The fact is that school districts have the staff, money and consultants to overwhelm the parents and their witnesses in a hearing and to do so with the very tax dollars paid by the parent.  The Schaffer decision unbalances the field and dilutes the child’s right to a free appropriate public education, even in

Connecticut.

 

            Far more devastating for

Connecticut children with disabilities was last year’s decision in Arlington Central School District v. Murphy, in which the Court held that parents could not recover the cost of their expert witness where they prevail in a due process hearing.  The determination of what constitutes an appropriate education is, at its heart, the sort of determination that can only be made based on expert testimony.  Stated otherwise, a parent of a child with a disability cannot hope to win against the district in a due process hearing without


The Honorable

Joseph Lieberman

September 10, 2007

Page Two

 

one or more expert witnesses.  Educational experts often cost between $2,000 and $4,000 for testing, observation, interviews, report writing and testifying.  For a child with autism, a parent may need to retain three or more experts – in diagnosis, applied behavioral analysis, and communication – to effectively challenge a school’s program.  With no hope of recovering these fees, only the wealthiest of parents can afford to exercise their right to due process.

 

            You have spoken out in the past about the need to provide education to students with disabilities.  You have supported reauthorization of the IDEA in 2004.  I think it is not acceptable that the activist

Roberts Court

can blithely wipe out the rights that you and your colleagues overwhelmingly created.  I ask you to take the lead in drafting and pushing legislation to overturn these two unfortunate decisions.

 

                                                                        Sincerely yours,

 

 

 

                                                                       

Andrew A. Feinstein 

Way to Go Walgreens!

July 9th, 2007

“>

Welcome to THE Pilot House Blog…..

April 27th, 2007

This blog page is a place for parents of special needs children to gather and share information with each other and to know that you are not ALONE!  You can share a story,  ask a question, suggest helpful resource links, or recommend a great book.

Missing Pieces video

April 27th, 2007

“>What a great song and message to send regarding autism!